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| # 2025-06-30 - True Biz by Sara Nović | |
| True biz (adj./exclamation; American Sign Language): | |
| really, seriously, definitely, real-talk | |
| I almost quit reading this book because it felt so harsh in the | |
| beginning. I am glad i stuck with it, because it tells an interesting | |
| story. I think that harshness was an unrelenting realism, true to the | |
| title. This book is a coming of age story about a Deaf girl who is | |
| growing up in a blighted community. In many ways she is profoundly | |
| unprivileged. She has a bad cochlear implant and suffers language | |
| deprivation and behavioral problems. | |
| This book is educational in multiple ways. There is some overlap | |
| between True Biz and Deaf Utopia, but they are very different kinds | |
| of books. Both books are personal and have lessons about Deaf | |
| culture and history. Deaf Utopia is more autobiographical and has a | |
| decided focus on the author's life. True Biz is fiction and felt to | |
| me like it had a more expansive scope, giving a stronger, starker | |
| vision of Deaf community. | |
| Deaf Utopia | |
| What follows are interesting excerpts from the book. | |
| > Those who are born deaf all become senseless and incapable of | |
| > reason. --Aristotle, 384-322 BCE | |
| > Those who believe as I do, that the production of a defective race | |
| > of human beings would be a great calamity to the world, will | |
| > examine carefully the causes that lead to the intermarriages of the | |
| > deaf with the object of applying a remedy. | |
| > --Alexander Graham Bell, 1883 | |
| > A manufacturer of amazing medical devices known as cochlear | |
| > implants, which restore hearing to the deaf, sold defective | |
| > implants to young children and adults for years--even after | |
| > learning that a significant number of the devices had failed. | |
| > --NBC News, March 14, 2014 | |
| * * * | |
| There was a theory among linguists that the brain's capacity for | |
| language learning--language as a concept, a modality for thought--is | |
| finite. Scientists called the period from ages zero to five the | |
| "critical window," within which a child had to gain fluency in at | |
| least one language, any language, or risk permanent cognitive damage. | |
| Once the window shut, learning anything became difficult, even | |
| impossible--without a language, how does one think, or even feel? | |
| The critical window remained "theoretical," mostly because | |
| intentionally depriving children of language was deemed by ethicists | |
| too cruel an experiment to conduct. And yet, February saw the | |
| results of such trials every day--children whose parents had feared | |
| sign language would mark them, but who ended up marked by its | |
| absence. These children had never seen language as it really was, | |
| outside the speech therapist's office, alive and rollicking, had | |
| never been privy to the chatter of the playground or around the | |
| dinner table. | |
| There was no reason assistive technology and sign language should be | |
| an either-or-affair; time and time again some of her strongest | |
| students proved that, when it came to language, more is more. Often | |
| when she found herself in pedagogical arguments with fellow | |
| administrators across the district, she put it this way: imagine | |
| telling someone that learning French would ruin their kid's English, | |
| hurt their brain. Usually people scoffed at her and February would | |
| nod. It /did/ sound ridiculous. And yet, though fear of | |
| bilingualism in two spoken languages has been dismissed as xenophobic | |
| nonsense, though it was now desirable for hearing children to speak | |
| two languages, medicine held fast to its condemnation of ASL. | |
| * * * | |
| February had been born on the edge of East Colson in her family's | |
| blue clapboard house, in the back bedroom that would later become her | |
| own. ... | |
| February's mother was slight and asthmatic and would certainly have | |
| benefited from some medical oversight during labor, but she had long | |
| made up her mind to have her baby at home. It would be much scarier, | |
| even dangerous, to give birth in a place where no one knew sign | |
| language. The Deaf community was replete with hospital horror | |
| stories, particularly of the labor and delivery variety. Her | |
| mother's friend Lu had been wheeled into the OR without anyone | |
| telling her that she was about to have a cesarean; a woman down in | |
| Lexington had died of a blood clot after nursing staff ignored her | |
| complaints of pain she'd scrawled on a napkin. The Americans with | |
| Disabilities Act, which would mandate that hospitals provide | |
| accommodations to deaf patients, was still more than a decade away. | |
| So February's mother wasn't taking any chances--if she couldn't have | |
| an epidural, at least she would know what the hell was going | |
| on. | |
| * * * | |
| # Ear Vs Eye: Deaf Mythology | |
| Eyeth--get it? | |
| In the Deaf storytelling tradition, utopia is called Eyeth because | |
| it's a society that centers the eye, not the ear, like here on | |
| Earth. | |
| In the Deaf world, there's a famous story about a utopian planet | |
| where everyone signs and everything is designed for easy visual | |
| access. In some tellings, hearing people are the minority and learn | |
| to conform to the majority sign language, in others the planet is | |
| completely Deaf. Have any of you seen an Eyeth story? | |
| Eyeth may be a pun, but it's not a joke--it's a myth. | |
| ## Myth (N): | |
| 1. a traditional story that reveals part of the worldview of a | |
| people, or embodies the ideals and institutions of a society | |
| 2. parable; short ficticious story that illustrates a moral attitude | |
| or principle | |
| The importance of Eyeth in Deaf culture is twofold. First, it | |
| highlights the things we value: sign language, communication, | |
| accessibility, community. It expresses our dreams: equality, a | |
| special place to call our own free from the demands of hearing | |
| society, recognition of our culture. | |
| Eyeth is also important because it reinforces Deaf culture as a | |
| culture. Storytelling and myths are an important part of what makes | |
| us human and a common thread across all kinds of ethnic groups. | |
| ## Did You Know? | |
| * Deaf scholars have proven that Deafness meets the requirements to | |
| be considered an ethnicity. | |
| * Historically this was the common view before oral education nearly | |
| eradicated sign languages. | |
| * Even Alexander Graham Bell, who wanted to rid society of deafness, | |
| spoke of "a race of Deaf people." | |
| Eyeth by Kelsey Young | |
| * * * | |
| In education, like everything in America, money ruled the day, and | |
| Deaf education had been hyperstratified by the rise of the cochlear | |
| implant. Wealthier kids whose parents could pay out-of-pocket for | |
| surgery and rehabilitative therapies often found success in the | |
| mainstream; kids whose families couldn't pay stayed deaf. But even | |
| as a shift in Medicaid coverage meant access to the device itself | |
| increased, access to the therapies and educational resources didn't. | |
| The hearing world was shocked to find that the working-class kid of a | |
| single mom who couldn't stay home and funnel practice sounds into his | |
| head, or drive him to countless therapy appointments all day, was not | |
| "cured" as the implant sales reps had promised. Those kids often | |
| wound up back at Deaf schools only now with vast cognitive deficits. | |
| The more vulnerable her student body was, the less politicians cared, | |
| or even pretended to care, about their fate. She wrote to the new | |
| legislators anyway, but seldom heard [ha ha] back. | |
| * * * | |
| In the late 19th century, manual language versus oral communication | |
| for deaf children was a hot topic of debate among educators, embodied | |
| by Thomas H. Gallaudet, the cofounder of the American School for the | |
| Deaf, and your friendly neighborhood eugenecist, Alexander Graham | |
| Bell. | |
| Gallaudet, who'd learned sign language from French teacher of the | |
| deaf Laurent Clerc, had seen the success of signing Deaf schools | |
| firsthand in France, making him a strong proponent of signed | |
| languages. But Bell believed deaf people should be taught to speak, | |
| and sign language should be removed from Deaf schools. | |
| Q: Why would a man with a deaf wife and mother want to eradicate sign | |
| language? | |
| A: Eugenics | |
| In his words: | |
| > Those who believe as I do, that the production of a defective race | |
| > of human beings would be a great calamity to the world, will | |
| > examine carefully the causes that lead to the intermarriages of the | |
| > deaf with the object of applying a remedy. | |
| > --Alexander Graham Bell, 1883 | |
| Eugenics was a popular pseudoscience at this time in the U.S., and | |
| Bell was a big advocate. The belief was used to justify the forcible | |
| sterilization of disabled people, a program that Hitler admired and | |
| is said to have learned from. | |
| Bell was against forced sterilization himself, but instead believed | |
| getting rid of sign language was the key to eradicating deafness. | |
| Without sign, deaf people would integrate into the general population | |
| rather than marry one another, thereby producing fewer deaf babies. | |
| Besides his ethics, Bell's actual science was wrong--most deafness | |
| isn't directly hereditary--but his ideas remain prevalent in deaf | |
| education circles today. | |
| Delegates At The Milan Conference In 1880 | |
| ----------------------------------------- | |
| Hearing: 163 | |
| Deaf: 1 | |
| In 1880, educators gathered in Milan, Italy, to discuss the state of | |
| deaf education. The delegates had been handpicked by the oralist | |
| society sponsoring the conference with the express goal of | |
| eliminating manual language from schools. | |
| The conference passed eight resolutions, effectively banning signed | |
| language from schools for the deaf around the world for about 80 | |
| years. Some schools, including the school that would become | |
| Gallaudet University, pushed back against the resolutions, but most | |
| adopted them. | |
| ## Milan's First Resolution: | |
| The Convention, considering the incontestable superiority of | |
| articulation over signs in restoring the deaf-mute to society and | |
| giving him a fuller knowledge of language, declares that the oral | |
| method should be preferred to that of signs in education and the | |
| instruction of deaf-mutes (Passed 160-4) | |
| ## Milan's Second Resolution: | |
| The Convention, considering that the simultaneous use of articulation | |
| and signs has the disadvantage of injuring articulation and | |
| lip-reading and the precision of ideas, declares that the pure oral | |
| method should be preferred (Passed 150-16) | |
| Where Milan's resolutions were implemented, deaf children were | |
| forbidden from using sign language in the classroom or outside of it. | |
| As punishment, hands were tied down, rapped with rulers, or slammed | |
| in drawers. The period between 1880 and 1960 is considered the dark | |
| age of deaf education. | |
| In the U.S., the National Association of the Deaf, founded in 1880 in | |
| response to the conference, became the first disability rights | |
| organization, and was and is run by Deaf people. | |
| Worried that ASL would become extinct, they also used brand-new film | |
| technology to document the language, making some of the earliest | |
| recordings of their kind. | |
| Milan's Legacy | |
| -------------- | |
| 1. Deaf teachers removed from schools because they cannot teach | |
| orally | |
| 2. Deaf students language deprived, no deaf role models | |
| 3. Fewer successful deaf professionals | |
| 4. Deafness further stigmatized | |
| Point 4 creates a feedback loop returning to point 2. | |
| In the U.S., eugenics became unpopular after it was associated with | |
| Nazism. Subsequent deaf education conferences have apologized for | |
| the harm done by the Milan resolutions. Science has proven ASL is a | |
| fully realized language, and that its use does not inhibit the | |
| learning of speech. Nevertheless, the shadow of eugenics persists in | |
| medicine and education today. The Alexander Graham Bell Association | |
| continues to advocate for the pure oral method of educating deaf | |
| children. | |
| author: Nović, Sara, 1987- | |
| detail: gopher://gopherpedia.com/0/Sara_Novic | |
| LOC: PS3614.O929 T78 | |
| tags: book,deaf,fiction,queer | |
| title: True Biz | |
| # Tags | |
| book | |
| deaf | |
| fiction | |
| queer |