(C) World Health Organization
This story was originally published by World Health Organization and is unaltered.
. . . . . . . . . .



Consultation on WHO principles for human genome data access and sharing [1]

[]

Date: 2024-03-04

For the potential of genomics to be realized, access to, and the sharing of, human genome data is critical. Following WHO’s Science Council 2022 Report on Accelerating access to genomics for global health: promotion, implementation, collaboration, and ethical, legal, and social issues, WHO is implementing a programme of activities to promote equitable and fair access to genomics technologies for the benefit of people worldwide. As part of this, WHO is developing guiding principles for human genome data access and sharing. It is intended that these will be global, high-level principles that will guide access to and the sharing of human genome data.

As part of this process, a virtual consultation was held in January 2024 with an interdisciplinary group of participants. The purpose of the virtual consultation was to discuss the diverse perspectives on issues related to human genome data access and sharing; discuss how a global set of principles from WHO may enable data access and sharing; and propose initial principles. The next stage of this process is an in-person meeting on 4 & 5 of March to further develop this work, before an anticipated public consultation later in 2024.

Objectives

The purpose of this consultation is to identify a set of principles and the draft accompanying text.

Participants (by invitation)

Representatives from WHO;

Representatives from the Technical Advisory Group on Genomics;

Representatives from the January virtual consultation.

Provisional main agenda items

[END]
---
[1] Url: https://www.who.int/news-room/events/detail/2024/03/04/default-calendar/consultation-on-who-principles-for-human-genome-data-access-and-sharing

Published and (C) by World Health Organization
Content appears here under this condition or license: Creative Commons CC-BY-NC-SA 3.0 IGO.

via Magical.Fish Gopher News Feeds:
gopher://magical.fish/1/feeds/news/who/

You are viewing proxied material from magical.fish. The copyright of proxied material belongs to its original authors. Any comments or complaints in relation to proxied material should be directed to the original authors of the content concerned. Please see the disclaimer for more details.