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Surveilling Autistic People: A New RFK jr Bingo Prize [1]
['This Content Is Not Subject To Review Daily Kos Staff Prior To Publication.']
Date: 2025-04-22
According to new reporting from CBS, the NIH is initiating a new effort to hoover up the private medical records of millions of Americans as part of Kennedy’s obsessive effort to determine the cause of autism in the next six months. As an added bonus, they are also apparently launching a “disease registry” to track Americans with autism. Little information is available right now about how extensive the tracking will be and how subjects will be identified, but none of it is good in my estimation.
It’s hard to know what to say about this other than adding another question mark to “it can’t happen here???” There’s real danger with Kennedy’s entire project beyond the obvious risks of privacy violations and misuse of personal data. This is being done against the backdrop of cuts to other autism research, the destruction of the Department of Education and a multi-state lawsuit that is seeking to overturn federal protections for disabled students in schools. Not to mention Kennedy’s other mutterings over evaluating access to SSRIs, mood stabilizers and other medications that millions of disabled people depend on. This administration, with Kennedy’s help, is literally destroying research and support programs that autistic people depend on to function. The programs that actually make their lives better and allow them to function in society. The programs that allow their families and caretakers to function. Trump and Kennedy are on a mission to destroy it all while making excuses to spread quack theories and collect data on undesirables. Unfortunately, this is just another Tuesday in Trump world, but shocking nonetheless.
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[1] Url:
https://www.dailykos.com/stories/2025/4/22/2318183/-Surveilling-Autistic-People-A-New-RFK-jr-Bingo-Prize?pm_campaign=front_page&pm_source=latest_community&pm_medium=web
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