From:
[email protected]
Date: Sun, 28 May 1995 09:13:38 -0400
Subject: Mac Medical Modifications, etc. (S) (long)
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I have been remiss about my promise to summarize to the list.
Back on 17 Feb, I said:
>A friend of mine has a relative who suffers from ALS and he is interested in
>any support groups/information that might be available here/on the net.
>
>He is also interested in adapting technology to help when various bodily
>systems start to fail. Is there any information on use of Macs for
>quadriplegics and the like?
I have chosen some of the replies as representative and edited those for
length. Any errors should be considered mine.
First about online ALS support groups. Bob Broedel <
[email protected]>
runs a mailing list whose header follows:
>===============================================================
>== ==
>== ----------- ALS Interest Group ----------- ==
>== ALS Digest (#175, 17 February 1995) ==
>== ==
>== ------ Amyotrophic Lateral Sclerosis (ALS) ==
>== ------ Motor Neurone Disease (MND) ==
>== ------ Lou Gehrig's disease ==
>== ------ Charcot's Disease ==
>== ==
>== This e-mail list has been set up to serve the world-wide ==
>== ALS community. That is, ALS patients, ALS researchers, ==
>== ALS support/discussion groups, ALS clinics, etc. Others ==
>== are welcome (and invited) to join. The ALS Digest is ==
>== published (approximately) weekly. Currently there are ==
>== 490+ subscribers. ==
>== ==
>== To subscribe, to unsubscribe, to contribute notes, ==
>== etc. to ALS Digest, please send e-mail to: ==
>==
[email protected] (Bob Broedel) ==
>== Sorry, but this is *not* a LISTSERV setup. ==
>== ==
>== Bob Broedel; P.O. Box 20049; Tallahassee, FL 32316 USA ==
>===============================================================
- From Tim Nolan <
[email protected]>:
>There is an organization in Minneapolis called "Closing the Gap". They
>have more technology resources info than imaginable. They also put out a
>regular newsletter. Unfortunately I don't have a contact address, but I
>don know they are in Minneapolis.
>
>Also, a great list group is available through St. John's U. in NY
>called project EASI. EASI can be contacted at
[email protected]. The EASI
>list is full of great information and contacts.
Finally, on the topic of Mac related hardware modifications, the following
from ann gutting (?) <
[email protected]> or <
[email protected]>:
>I found some information which may be of help. The Apple ftp site:
>
ftp://ftp.apple.com/apple/disability-solutions/
>has several _very_ informative files.
>
>1. The Q&A from Apple includes product names and contact information.
>
>2. The FilemakerPro database, MDR (Macintosh Disabilities Resources), is
>excellent.
>
>To contact them directly:
>
>Apple Computer, Inc.
> Worldwide Disability Solutions Group
> One Infinite Loop, MS 38-DS
> Cupertino, CA 95014
>
> (800) 776-2333 - voice
> (800) 833-6223 - TTY
Thanks to all who responded. I hope this helps someone else.
- -Mark Milem
[email protected]
[email protected]
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