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Return to: General chat & Info updates - New May 25 |
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#Post#: 106216-------------------------------------------------- |
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So......some rt siz info |
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By: sizzle Date: May 10, 2025, 7:30 am |
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[center]As you may - or may not have discovered - i was away |
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between Monday and today. Reason was hubby and me were in Bergen |
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- a 5 hour train ride away - to go to classes about: |
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Vestibularisschwannom |
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A vestibular schwannoma, also called acoustic neuroma, is a |
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benign tumor that develops on the vestibulocochlear nerve that |
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passes from the inner ear to the brain. The tumor originates |
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when Schwann cells that form the insulating myelin sheath on the |
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nerve malfunction. |
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[img |
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width=300] |
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https://imagevault.nhi.no/publishedmedia/1ub2ocxifnoi5xxas4q2/Akustikusnevrom__… |
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It is rare - about 250 patients a year - and Haukeland Hospital |
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https://www.helse-bergen.no/en/ |
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(where we have been in for |
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classes now and B's MRI's and whatnots the last years) has been |
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the National Treatment Center since 2010. It is very hard to |
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discover unless that is looked for especially. |
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What it can do to a person: |
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Affect your balance and hearing, and if growing too big ( a 3 |
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cm flat one can be ok - it is the volum more than the size) can |
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hurt and affect the cerebellum. B is ok for now - hearing is |
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shot on one ear, balance is a bit off - but not more than he can |
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function somewhat normally...no long drives and some sounds are |
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bad...like TV on and i want to say something - he has to stop |
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the TV sound....things like that are easy to forget and hard to |
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understand always, but the classes helped a lot. |
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Treatments can be Gamma knife which proves effective for like |
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96% of the patients - a one time treatment - for a very few it |
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has to be repeated - or surgery - which is a bit more risky to |
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say the least. So far he is in the wait/scan stage - meaning an |
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MRI every 2 years to see if the tumor has grown or not and |
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how...and how he feels. |
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So just for info - and feel free to ask if you are curious about |
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this Vestibularisschwannom |
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[/center] |
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#Post#: 108183-------------------------------------------------- |
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Re: So......some rt siz info |
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By: sassy mischief Date: June 7, 2025, 8:33 pm |
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send you and B lots of love and hugs... |
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#Post#: 108446-------------------------------------------------- |
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Re: So......some rt siz info |
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By: SeXXXy Date: June 12, 2025, 7:46 am |
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Sending you and B love and strength! :pinkheart: :pinkheart: |
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-big hugs- Let me know if there is anything here I can do to |
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help while you're away! |
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#Post#: 114004-------------------------------------------------- |
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Re: So......some rt siz info |
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By: sizzle Date: September 10, 2025, 8:12 am |
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thanks, sassy and SeXXXy...s... |
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and when i am away - tamlyn and SeXXXy are in charge....(thanks |
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for the offer, SeXXXy) (you would be also sassers, but i know |
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how busy you are....hugs tight) |
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